The American Migraine Foundation has announced the goal of creating the first Migraine Patient Registry and Biorepository, an international database of information on every person who has migraine, along with a collection of physical samples of saliva, blood and other genetic materials and biological fluids, and brain images, for use in conducting migraine research. David W. Dodick, MD, FRCP (C), FACP, Chair of the Foundation, and past PAINWeek faculty participant commented “We hope to be able to assemble a treasure trove of data that researchers can access to find powerful clues to migraine causes and treatments. The data collected in the registry will also help treatment providers tailor existing therapies to specific types of migraine.”
The Foundation contends that migraine research (and headache research overall) is woefully underfunded, and points out that there is no national database of migraine patients, and only one class of drugs has been developed in the last 30 years to treat this debilitating disorder. Statewide and nationwide patient databases exist for most neurological diseases (as well as for other diseases) and there are numerous examples of the success of these biorepositories in advancing understanding of, and treatment for, the respective conditions. A news story, with link to more information about the proposed registry, may be found here.
Posted on January 8, 2015